Stuttering As a Disability in Pakistan; Policies and Its Implementation
DOI:
https://doi.org/10.36552/pjns.v27i2.873Abstract
Objective: Stuttering is a disorder of speech fluency not only includes academic and social consequences but also has emotional/behavioral outcomes. Stuttering leads to negative emotions and feelings i.e., low confidence, frustration, shame, embarrassment, poor self-image, and negative social identity. The present study was aimed at incorporating the definition of disability in Pakistan policy and determining the position of stuttering in it.
Materials and Methods: The nature of the current study is qualitatively conducted on 10 Participants approached through convenient sapling and exploring their responses through Thematic analysis. Participants falling in this category were recruited into the study from SLPs, Lawyers, disability advocates, and CSPs as per inclusion criteria. Common masses were excluded from the study. A Self-Developed Questionnaire/structured interviews were conducted. Questions developed by the Lawshe method. The tool was validated through content validity by 10“experts”.
Results: Thematic analysis was done and the findings of the study indicated an individual’s negative reaction towards association with any kind of disability and communication barriers are also the main source of not fitting disability as a definition. Results also showed that lack of assessment and screening tools are the main barrier, however, Visibility as per data in research publications also consider a barrier towards recognition of it.
Conclusion: The study has practical implications regarding stuttering as a Disability in Pakistan.
References
Perez HR, Stoeckle JH. Stuttering: clinical and research update. Canadian Family Physician, 2016; 62 (6): 479-84.
Sari H, Gökdag H. An Analysis of Difficulties of Children with Stuttering Enrolled in Turkish Primary Inclusive Classes Who Encounter in Academic and Social Activities: From Their Perspectives. Journal of Education and Practice, 2017; 8 (2): 31-43.
Fakhrerahimi S, Dehghan A, BAKHSHANI NM. Causes of speech disorders in primary school students of Zahedan, 2013: 79-82.
Furnham A, Davis S. Involvement of social factors in stuttering: A review and assessment of current methodology. Stammering research: an online journal published by the British Stammering Association, 2004; 1 (2): 112.
Cohen R. The guiding principles on internal displacement: An innovation in international standard setting. Global Governance, 2004; 10 (4): 459-80.
Peek L. Children and disasters: Understanding vulnerability, developing capacities, and promoting resilience — An Introduction. Children Youth and Environments, 2008; 18 (1): 1-29.
Oliveira CM, Nogueira PR. Prevalence of risk factors for stuttering among boys: analytical cross-sectional study. Sao Paulo Medical Journal, 2014 Apr. 14; 132: 152-7.
Bandelow B, Michaelis S. Epidemiology of anxiety disorders in the 21st century. Dialogues in Clinical Neuroscience, 2022 Apr. 1.
Ajdacic-Gross V, Vetter S, Müller M, Kawohl W, Frey F, Lupi G, Blechschmidt A, Born C, Latal B, Rössler W. Risk factors for stuttering: a secondary analysis of a large data base. European archives of psychiatry and clinical Neuroscience, 2010; 260: 279-86.
Boyle MP, Daniels DE, Hughes CD, Buhr AP. Considering disability culture for culturally competent interactions with individuals who stutter. Contemporary Issues in Communication Science and Disorders, 2016; 43 (Spring): 11-22.
Singal N, Sabates R, Aslam M, Saeed SJIJoIE. School enrolment and learning outcomes for children with disabilities: findings from a household survey in Pakistan, 2020; 24 (13): 1410-30.
Lord J, Posarac A, Nicoli M, Peffley K, McClain-Nhlapo C, Keogh M. Disability and International Cooperation and Development, 2010.
Ahmed M, Khan AB, Nasem F. Policies for special persons in Pakistan: Analysis of policy implementation. Berkeley Journal of Social Sciences, 2011; 1 (2): 1-1.
Ahmad S, Yousaf M. Special education in Pakistan: In the perspectives of educational policies and plans. Academic Research International, 2011; 1 (2): 228.
Shahid S, Qureshi N, Saleem A. Efforts of government on non-formal education in 21st century: content analysis of national education policies of pakistan. Pakistan Journal of Educational Research, 2021; 4 (4).
Israr M, Naz A, Gul A, Khan F, Khan W. Women’s Political Deprivation: A Natural Selection or Cultural Injustice The Case of Pakhtun Society, Pakistan. Clinical Social Wokr. 2018: 44.
Kallianes V, Rubenfeld P. Disabled women and reproductive rights. Disability & Society, 1997; 12 (2): 203-22.
S Sander RW, Osborne CA. Stuttering: understanding and treating a common disability.
American Family Physician, 2019; 100 (9): 556-60.
Groce NEJAPDRJ. Adolescents and youth with disability: Issues and Challenges, 2004; 15 (2): 13-32.
Cooper JJLR, Disability C, J., Jessica Kingsley Publishers, London. Improving The Civil Rights of People with Disabilities Through International Law, 2000: 59-81.
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Copyright (c) 2023 Aqsa Malik, Romana Pervez, Gul Nayab, Nusrat Naseem, Zaish Awan, Aqeel Ahmed, Shoukat Hayat, Muhammad IbrarThe work published by PJNS is licensed under a Creative Commons Attribution-NonCommercial 4.0 International (CC BY-NC 4.0). Copyrights on any open access article published by Pakistan Journal of Neurological Surgery are retained by the author(s).
